Deafblindness is a condition that causes both hearing and vision impairments in children. It can make it difficult for children to communicate and interact with the world around them.
There are two types of deafblindness: congenital and acquired. Congenital deafblindness is present at birth, while acquired deafblindness develops later in life.
There is no cure for deafblindness, but early intervention and support can help children with the condition to lead happy and fulfilling lives.
There are many different causes of deafblindness, both genetic and environmental. Some children are born with congenital deafblindness, while others develop it later in life as a result of illness or injury.
The most common cause of congenital deafblindness is Usher syndrome, which is a genetic condition that affects the development of both hearing and vision. Other causes of congenital deafblindness include rubella syndrome (a viral infection that can damage the ears and eyes) and CHARGE syndrome (a rare condition that can cause a range of birth defects).
Acquired deafblindness can be caused by illnesses such as meningitis or measles, or by injuries to the head or eyes. It can also occur as a result of aging or as a side effect of certain medications.
Deafblindness can be difficult to diagnose, as it can vary greatly in severity and symptoms. A child with mild deafblindness may only have difficulty seeing in low light, while a child with severe deafblindness may be completely blind and unable to hear anything.
There are a number of tests that can be used to diagnose deafblindness, including hearing tests, vision tests, and brain scans. A diagnosis of deafblindness is usually made by an expert team that includes an ophthalmologist (eye doctor), an otolaryngologist (ear, nose, and throat doctor), and a neurologist.
What are the early signs and symptoms of deafblindness?
The early signs and symptoms of deafblindness vary depending on the type and severity of the condition. However, some common signs and symptoms include:
• difficulty seeing in low light or at a distance
• squinting or closing one eye to see better
• holding objects close to the face to see them better
• difficulty hearing high-pitched sounds
• poor balance and coordination
• delayed speech and language development
If you notice any of these signs or symptoms in your child, it is important to speak to your doctor as soon as possible. Early intervention is essential for children with deafblindness, as it can help them to develop the skills they need to lead happy and fulfilling lives.
Deafblindness can affect a child's development in many different ways. It can delay their speech and language development, as well as their social and emotional development.
Children with deafblindness may find it difficult to communicate and interact with the world around them. This can lead to feelings of isolation and frustration.
There is no cure for deafblindness, but there are a number of therapies and interventions that can help children with the condition to develop the skills they need to lead happy and fulfilling lives.
Some common therapies for deafblindness include:
• Visual Impairment Therapy: This therapy helps children to develop their visual skills, such as scanning, tracking, and eye-hand coordination.
• Hearing Therapy: This therapy helps children to develop their listening skills and learn how to lip-read.
• Speech Therapy: This therapy helps children to develop their speech and communication skills.
• Occupational Therapy: This therapy helps children to develop the fine motor skills they need for everyday activities such as eating, dressing, and grooming.
The main aim of therapy for deafblindness is to improve communication and social skills. This can be done through a variety of methods, including sign language, Braille, and tactile signing.
Therapy can also help children with deafblindness to develop independent living skills, such as cooking, dressing, and using public transport.
As a parent or caregiver of a child with deafblindness, you play an important role in their development and wellbeing. There are a number of things you can do to support your child, including:
• Learning about deafblindness and the different therapies and interventions that are available.
• Encouraging your child to communicate in whatever way they can, whether that is through sign language, Braille, or tactile signing.
• Helping them to develop independent living skills such as cooking, dressing, and using public transport.
• Providing emotional support and understanding.
There is a range of financial support available in Australia for children with deafblindness. The main source of funding is the National Disability Insurance Scheme (NDIS).
The NDIS provides funding for a range of supports and services, including:
• therapies and interventions
• equipment and assistive technology
• personal care and daily living support
• community access and participation
For more information about the NDIS, visit their website or call 1800 800 110.
Caring for a child with deafblindness can be both rewarding and challenging. It is important to look after your own wellbeing, as well as the wellbeing of your family. Here are some tips:
• Make time for yourself – try to do something that you enjoy every day, even if it is just for a few minutes.
• Stay connected with friends and family – socialising can help you to feel connected and supported.
• Join a support group – there are many different types of support groups available, including online groups. This can be a great way to meet other families in similar situations.
• Seek professional help if you need it – there is no shame in seeking help from a counsellor or psychologist if you are finding things tough.
